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Application of the ICAN model for transition-aged youth with intellectual and developmental disabilities

Cassandra Watts, MS, CTRS, Heather R. Porter, PhD, CTRS, Gretchen Snethen, PhD, CTRS

Abstract


Successful community integration (CI) is a concern for transition-aged youth (TAY) with intellectual and developmental disabilities (IDD). TAY with IDD transitioning into adulthood show a decrease in community participation as they age, participate less frequently in the community, have less environmental support, have low employment rates, and tend to participate in more isolated, solitary, and passive activities. In an attempt to improve CI outcomes for this population, transitioning services are mandated in the public-school system; however, lack of compliance and a consistent model pose major concerns. Although developed for adults with schizophrenia spectrum disorders, the Independence through Community Access and Navigation (ICAN) intervention may be a relevant CI model for recreational therapists (RTs) to use with TAY with IDD. It is a theoretically grounded intervention designed to support participation in community activities through coparticipation with an RT and skill building in the community environment. This article will present issues regarding CI for TAY with IDD, discuss the need for an RT transitioning model for this population, and present a rationale for the application of the ICAN model by RTs for TAY with IDD.


Keywords


ICAN model, transition-aged youth, transitioning, community participation, intellectual disability, developmental disability, supported leisure

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References


Porter H: Community participation: integration, transitioning, and inclusion. In: Porter H, ed. Recreational Therapy Basics, Techniques, and Interventions. Enumclaw, WA: Idyll Arbor, Inc, 2015.

Sander AM, Clark A, Pappadis MR: What is community integration anyway? Defining meaning following traumatic brain injury. J Head Trauma Rehabil. 2010; 25(2): 121-127.

DHHS: Fact sheet: Summary of key provisions of the Home and Community-Based Services (HCBS) Settings final rule. In Services HaH (ed.) Vol CMS 2249-F/2296-F. Baltimore, MD: Centers for Medicare & Medicaid Services, 2014.

AAPD: Identifying Transition Age-Youth with Disabilities. Washington, DC: AAPD, 2016; 161. Available at https://www.aapd.com/wp-content/uploads/2016/03/hunter-collegeidentifying.pdf. Accessed November 15, 2017.

Myers E, Davis BE, Stobbe G, et al.: Community and Social Participation Among Individuals with Autism Spectrum Disorder Transitioning to Adulthood. J Autism Dev Disord. 2015; 45(8): 2373-2381.

Bedell G, Coster W, Law M, et al: Community participation, supports, and barriers of school-age children with and without disabilities. Arch Physical Med Rehabil. 2013; 94(2): 315-323.

Butterworth J, Hall AC, Smith F, et al: StateData: The National Report on Employment Services and Outcomes. Boston, MA: Institute for Community Inclusion, University of Massachusetts Boston, 2011.

National Core Indicators 2010: National Core Indicators (NCI) Consumer Outcomes: Phase XII Final Report 2009-2010 Data. Available at: http://www.nationalcoreindicators.org/resources/reports/2011/. Accessed January 8, 2018.

Simonsen M, Neubert D: Transition youth with intellectual and other developmental disabilities: Predicting community employment outcomes. Career Dev Transition Except Individuals. 2012; 36(1): 188-198.

Verdonschot MML, de Witte LP, et al.: Community participation of people with an intellectual disability: A review of empirical findings. J Intellect Disabil Res: JIDR. 2009; 53(4): 303-318.

Schleien SJ, Miller KD, Walton G, et al.: Parent perspectives of barriers to child participation in recreational activities. Ther Recreation J. 2014; 48(1): 61-73 13p.

Heah T, Case T, McGuire B, et al.: Successful participation: the lived experience among children with disabilities. Can J Occup Ther Revue Canadienne D’ergothérapie. 2007; 74(1): 38-47.

Badia M, Orgaz MB, Verdugo MÁ, et al.: Patterns and determinants of leisure participation of youth and adults with developmental disabilities. J Intellect Disabil Res: JIDR. 2013; 57(4): 319-332.

Kohler PD, Field S: Transition-focused education: Foundation for the Future. J Special Educ. 2003; 37(3): 174-183.

Croke EE, Thompson AB: Person centered planning in a transition program for Bronx youth with disabilities. Children Youth Services Rev. 2011; 33(6): 810-819.

Landmark LJ, Zhang D: Compliance and practices in transition planning: A review of individualized education program documents. Remedial Special Education. 2013; 34(2): 113-125.

U.S. Department of Education: IDEA regulations: Secondary transition. 2007. Available at http://idea.ed.gov/explore/view/p/,root,dynamic,TopicalBrief,17,.html. Accessed January 20, 2018.

Bateman B. Legal requirements for transition components of the IEP. 2016. Available at http://www.wrightslaw.com/info/trans.legal.bateman.htm. Accessed January 20, 2018.

deFur S, Getzel E, Kregel J: Individual transition plans: A work in progress. J Vocational Rehabil. 1994; 4: 139-145.

Everson JM, Zhang D, Guillory JD: A statewide investigation of individualized transition plans in Louisiana. Career Dev Except Individuals. 2001; 24(1): 37-49.

Williams JM, O’Leary ED: What we’ve learned and where we go from here. Career Dev Except Individuals. 2001; 24(1): 51-71.

Eisenman LT, Tanverdi A, Perrington C, et al.: Secondary and postsecondary community activities of youth with significant intellectual disabilities. Education Training Dev Disabil. 2009; 44(2): 168-176.

Wilder A, Craig P, Frye M: Therapeutic recreation empowering kids: Exploring best practices in transition. Am J Recreation Ther. 2014; 13(2): 33-48.

Snethen G, McCormick BP, Van Puymbroeck M: Community involvement, planning and coping skills: Pilot outcomes of a recreational-therapy intervention for adults with schizophrenia. Disabil Rehabil. 2012; 34(18): 1575-1584.

Sörgaard KW, Hansson L, Heikkilä J, et al.: Predictors of social relations in persons with schizophrenia living in the community: A Nordic multicentre study. Social Psychiatry Psychiatr Epidemiol. 2001; 36(1): 13-19.

Graham C, Arthur A, Howard R: The social functioning of older adults with schizophrenia. Aging Mental Health. 2002; 6(2): 149-152.

Yilmaz M, Josephsson S, Danermark B, et al.: Participation by doing: social interaction in everyday activities among persons with schizophrenia. Scandinavian J Occupl Ther. 2008; 15(3): 162-172.

Snethen G, McCormick B, Van Puymbroeck M: Independence through community access and navigation (I-CAN) in adults with schizophrenia spectrum disorders Part 2: Treatment planning and implementation. Am J Recreation Ther. 2011; 10(1):35-45.

Salzer M: Temple university rehabilitation research and training center on community living and participation of individuals with psychiatric disabilities. Landover, MD: National Rehabilitation Information Center, Rehabilitation Research and Training Centers; 2013-2018. Available at http://search.naric.com/research/pd/redesign_record.cfm?search=1&type=advanced&display=detailed&all=90RT5021&exact=&any=&omit=&fld1=PN&txt1=&op1=AND&fld2=PN&txt2=&op2=AND&fld3=PN&txt3=&op3=AND&fld4=PN&txt4=&funding_status=all&criteria=&state=&start_month=&start_year=&project_type=&funding_priority=&rec=3281. Accessed January 22, 2018.

World Health Organization ICF: International Classification of Functioning, Disability, and Health. 1st ed. Geneva: World Health Organization; 2001.

Porter H, Burlingame J. Recreation Therapy Handbook of Practice: ICF-based Diagnosis Treatment. Enumclaw, WA: Idyll Arbor; 2006.

Porter HR, Vanpuymbroeck M: Utilization of the International Classification of Functioning, Disability, and Health Within Therapeutic Recreation Practice. Ther Recreation J. 2007; 41(1): 47-60.

Howard D, Browning C, Lee Y: The international classification of functioning, disability, and health: Therapeutic recreation code sets and salient diagnostic core sets. Ther Recreation J. 2007; 41(1): 61-81.

Van Puymbroeck M, Porter HR, McCormick BP, et al.: The role of the International Classification of Functioning, Disability, and Health (ICF) in therapeutic recreation practice, research, and education in professional issues in therapeutic recreation: on competence and outcomes. In: Stumbo N, ed. Professional Issues in Therapeutic Recreation: On Competence and Outcomes. Vol 2. Urbana, IL: Sagamore; 2009: 43-57.

Snethen G, McCormick B, Van Puymbroeck M: Independence through community access and navigation (I-CAN) in adults with schizophrenia spectrum disorders Part 1: Theoretical & practical foundations. Am J Recreation Ther. 2011; 10(1): 25-34.

Foley Kr, Dyke P, Girdler S, et al.: Young adults with intellectual disability transitioning from school to postschool: A literature review framed within the ICF. Disabil Rehabil. 2012; 34(20): 1747-1764.

Ryan RM, Deci EL: Self-determination theory and the facilitation of intrinsic motivation, social development, and well-being. American Psychologist. 2000; 55(1): 68-78.

Sheppard L, Unsworth C: Developing skills in everyday activities and self-determination in adolescents with intellectual and developmental disabilities. Remedial Special Educ. 2011; 32(5): 393-405.

Abery B, Stancliffe R: An ecological theory of self-determination: Theoretical foundations. Springfield, IL: Charles C. Thomas; 2003.

Algozzine R, Browder D, Karvonen M: Effects of interventions to promote self-determination for individuals with disabilities. Rev Educl Res. 2001; 71(2): 219-277.

Field S, Sarver MD, Shaw SF. Self-Determination: A Key to Success in Postsecondary Education for Students with Learning Disabilities. Remedial Special Educ. 2003; 24(6): 339-349.

Agran M, Wehmeyer ML, Hughes C. Teaching self-determination to students with disabilities: Basic skills for successful transition. United States of America: Brookes, P.H.; 1998.

Argan M, Blanchard C, Wehmeyer M. Promoting transition goals and self-determination through student self-directed learning: The self-determined learning model of instruction. Educ Training Mental Retardation Dev Disabil. 2000; 35(4): 351-364.

Benz MR, Lindstrom L, Yovanoff P: Improving graduation and employment outcomes of students with disabilities: predictive factors and student perspectives. Except Children. 2000; 66(4): 509-529.

Wehmeyer ML, Field S, Doren B: Self-Determination and student involvement in standards-based reform. Except Children. 2004; 70(4): 413-425.

Wehmeyer ML, Palmer SB. Adult outcomes for students with cognitive disabilities three-years after high school: The impact of self-determination. Education Training Dev Disabil. 2003; 38(2): 131-144.

Soydan AS. Supported Education: A portrait of a psychiatric rehabilitation intervention. Am J Psychiatric Rehabil. 2004; 7(3): 227-248.

Bond GR: Principles of the individual placement and support model: Empirical support. Psychiatric Rehabil J. 1998; 22(1): 11-23.

Bond GR, Salyers MP, Dincin J, et al: A randomized controlled trial comparing two vocational models for persons with severe mental illness. J Consulting Clin Psychol. 2007; 75(6): 968-982.

Drake RE, Bond GR: Introduction to the special issue on individual placement and support. Psychiatric Rehabil J. 2014; 37(2): 76-78.

Nygren U, Sandlund M, Bernspång B, et al.: Exploring perceptions of occupational competence among participants in Individual Placement and Support (IPS). Scandinavian J Occup Ther. 2013; 20(6): 429-437.

Drake RE, Becker DR: The individual placement and support model of supported employment. Psychiatric Services (Washington, DC). 1996; 47(5): 473-475.

Becker D, Drake R: A Working Life for People with Severe Mental Illness. New York, NY: Oxford University Press; 2003.

Wehman P, Revell G, Kregel J: Supported employment: A decade of rapid growth and impact. American Rehabil. 1998; 24(1): 31-44.

Wehman P, Chan F, Ditchman N, et al.: Effect of supported employment on vocational rehabilitation outcomes fo transition-age youth with intellectual and developmental disabilities: A case control study. Intellectl DevDisabil. 2014; 52(4): 296-310.

Miller WR, Rollnick S: Ten things that motivational interviewing is not. Behav Cognitive Psychother. 2009; 37(2): 129-140.

Cantor N, Sanderson CA: Life task participation and well-being: The importance of taking part in daily life. In: Well-being: The foundations of hedonic psychology. New York, NY, US: Russell Sage Foundation, 1999; 230-243.

Mancini MA: The role of self-efficacy in recovery from serious psychiatric disabilities: A qualitative study with fifteen psychiatric survivors. Qualitative Social Work: ResPractice. 2007; 6(1): 49-74.

Hensel E, Kroese BS, Rose Jjlrbau: Psychological factors associated with obtaining employment. J Appl Res Intellect Disabil. 2007; 20(2): 175-181.

Taggart L, McLaughlin D, Quinn B, et al.: Listening to people with intellectual disabilities who misuse alcohol and drugs. Health Social Care Commun. 2007; 15(4): 360-368.

Frielink N, Embregts P: Modification of motivational interviewing for use with people with mild intellectual disability and challenging behaviour. Journal of Intellectual & Developmental Disability. 2013; 38(4): 279-291.




DOI: http://dx.doi.org/10.5055/ajrt.2017.0146

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